One Week Down...

Well we survived the first week!  Katie is such a trooper.  I'm fairly certain that she believes this cast is just now a part of her body.  She doesn't seem phased by it at all.  She is back to sleeping through the night, and she has still figured out how to move around in her crib.  She's like her big brother in that respect! 

She began at the top of the crib, and woke up, unhappy, at the bottom!  Little stinker!

 

Diaper changes have been a breeze, feeding has been successful...I'd say we've mastered this spica cast pretty well.  Don't get me wrong, I still don't like it.  But, I can live with it.  It's only for a short while.  We will survive!
This week we ordered her spica table--thank you to her Papa Mike for buying it for us! And it will be arriving sometime next week.  I cannot WAIT for it to arrive.  Play time is difficult for a baby in a spica cast because they need to move around a lot--I think she just gets uncomfortable in her various play positions.  We've been getting creative though, and it's been working....but the Spica Table from Ivy Rose Spica Tables will be a life saver!

Someone took over our favorite chair!

 

Doctor's Visit:  We had a visit to her doctor this week, and we scheduled her cast change.  (They change the cast mid way to adapt to her growing body.) It is scheduled for May 31st, which is 8 weeks post the original procedure.  We had originally thought it would be at 6 weeks...so this feels late.  But, I trust the doctor...since he has 38 years more experience than I do.  We were able to talk to him about her procedure, and he said that it went really really well.  He absolutely feels that the procedure will be a success, and even thinks that she won't need the brace after the cast comes off--BUT, he did say that it ultimately depends on her body and her healing.

I continue to pray that she won't need the brace afterwards. 

Gift from a friend--it's perfect. 

Thanks for the continued prayers for our family!  People keep telling me that I'm so strong--I'm not strong, GOD is strong, and your prayers giving me strength!  

7 weeks until the cast change! I uploaded a new app for my phone.  It's my new favorite app!

Three is a Magic Number

Day three. Such a better day. Katie slept well last night only waking once, and today she took two great naps. She seems to finally feel comfortable in her new "skin."  I was able to get out of the house to watch the big kids play soccer while my mom watched our Hip Goldenbaby.  I'm even getting back into my workout routine after being sick for over a week (emotionally and physically--but mostly physically--just ask the lady who moved away from me today at Caleb's soccer game while I was coughing) I'm starting to feel like myself again. I am 100% certain that it's because of the hundreds of people who are praying for us. There is such power in prayer. My dear friend sent me these Bible verses today:
Philippians 2:13
For it is God who is at work in you, both to will and to work for His good pleasure.
Proverbs 3:5-6
Trust in the LORD with all your heart, And do not lean on your own understanding. In all your ways acknowledge Him, And He will make your path straight.
I gained so much comfort and felt the strength provided in these words. I don't know why we have to go through this journey, but I am going to trust in God's plan for us and for sweet Katie.

Sleeping soundly with her nigh-nigh

Spica is a Four Letter Word

This whole experience has been a whirlwind of emotions.  It began a couple months ago when I first googled her little fat thigh.  My first emotion: fear.  Please don't let her have what Google is telling me she has.  My second emotion: devastation.  I can't believe she has it, and I can't believe she is going to be in a cast for three months.  My third emotion: Relief.  The procedure is done.  She is on the road to recovery.  My final (current) emotion: Anger/frustration/disappointment.  Angry that we have to be going through this at all, frustrated that this is our reality and I can do nothing to make time go faster, and can do nothing to help her feel more comfortable, and disappointment that she won't be able to proceed in her development like I'd imagined she would back when I first learned I was pregnant.  It's exhausting having so many emotions, and I'm trying really hard to stay positive.  I mean, the fact is, she's in the cast.  This is happening.  This is her reality.  This is our reality.  So deal with it. So, I'm dealing with it. (A lot of prayer helps to deal with it!  And there was a lot of praying going on in the middle of the night last night!  "I can do all things through Christ who strengthens me.")
The first night in the spica cast did not go well.  Poor baby girl was not comfortable. She woke up several times in the night needing to be held. To add insult to injury, she seemed to develop pink eye, and her left eye was stuck closed at about 1:30 in the morning.  A warm compress opened it right up, but I mean really, doesn't the poor girl have enough to deal with right now?! (Incidentally, breast milk DOES in fact clear up pink eye.  Thank you, Google.)
Katie did surprisingly well all day today.  She had a great time playing with her toys, and even tried to move around while on her tummy.  She obviously can't roll over, but she kept trying to pull herself up, (to no avail), and she mastered the art of turning her body around in circles.  I wouldn't be surprised if she found a way to creep while in her cast.  She'll be one buff little baby if she does figure that out! I was really pleasantly surprised by how seemingly unaffected she was today while playing.  It was great to see!
Naps were a challenge.  My mom bought a memory-foam pillow for Katie, which she seemed to enjoy. It's just still hard for her to get/stay comfortable.
My mom figured out how to make Katie fit in the high chair, so that was a bonus.  I was able to feed her carrots to her without having to seat her in my lap.  That felt great!
Bedtime tonight Katie was exhausted because she's not napping well.  It still took her a while to fall asleep, but she finally did.  She woke up a few hours later and it appears that her cold is back.  Poor kid can't catch a break right now.  On went the humidifier.  Praying hard that tonight goes on to be a better night.
Today's confession (although I don't think it's much of a surprise to anyone reading this):   I don't like the spica cast.  I hate how it feels while I hold her, I don't like changing the diapers with it (although I am becoming quite the pro, and Katie seems to like being flipped over during diaper changes), and I feel terrible that she can't sleep comfortably while wearing it.  People keep saying that it will get better, and since these people have had their own kids in spica casts, I'm going to choose to believe them. But, for right now, spica is a four letter word.  And I can't wait for the next 82 days to be behind us.
Lord, give me the strength to endure this experience. Help me to remember my bountiful blessings.  Please take care of my sweet angel tonight and help her to get a good night's sleep.  Amen.

Flowers from my mom!

Getting creative with cushions (boppy pillow!) to keep her comfortable.

Bean bags make for a cozy chair

Beautiful flowers from our dear cousin Carol and family!

Sleeping on the memory-foam pillow

The flowers with balloons that came for the kids!

 

Procedure Day

This was probably the hardest day of my life.  I wanted to just take my little girl and run away with her...but she would still have hip dysplasia if I did that, so that would be no good. 
We left for the hospital at 7:45, and the fun began.  Katie was in such good spirits, and charmed every person who met her. 
She took a nap on me while we waited for the doctor to arrive, and I just held onto those sweet little legs tightly, knowing that it would be a while before I'd be able to snuggle with them again.  It was a very emotional morning.  Dave and I took turns being the strong one.  It seemed that when one of us felt overwhelmed with emotion, the other one would take the practical "it's only a cast, it could be so much worse, this is a good thing for her" approach. 
At 10:30 the nurse carried her away...and I lost it.  I can't quite explain why a cast being placed on her little body brought on so much emotion.  It's only 3 months.  She is perfectly healthy.  It truly could be so much worse.  But yet, this has been a very emotional experience.  The thought of not getting to hold my baby close, give her a bath, or just set her down to play with her toys for three months is an emotional challenge.  The thought of the delays that she may face, not getting to watch her crawl at the same age that her brother and sister did...but I digress.
The hour passed by quickly, and soon the doctor arrived to let us know he was done.  As we walked back to the recovery room, the doctor gave us the good news that her hip was not actually completely dislocated like the x-ray had made it appear.  This is a good thing!  It was only partially dislocated, with the socket in the shape of a J opposed to a C...if that makes sense.  So, her hip has been relocated, and this time spent in the cast is supposed to turn that J into a C, and allow time for the tendons to strengthen.  The doctor seemed very optimistic.  There is a possibility of a brace for three months for Katie after the cast comes off.  We are praying for no brace. Please pray that the cast does the job. 
What followed was the most difficult and most emotional time of the entire day.
We walked toward the recovery room, but before we even arrived we could hear her.  She was beside herself.  There were two nurses trying to hold her/console her.  She was arching her back and just wailing.  It was devastating.  Then the immediate realization that I couldn't just pick her up and hold her close struck me. I didn't know how to pick her up.  She had this cast on her and I could not figure out how to manipulate it.  I finally had her in my arms, and was instantly struck with how hard the cast was, and came to terms with the fact that this was as close as I'd be able to hold her for a while.  My heart hurt at that moment. 
Holding Katie in my arms I tried to feed her.  She was starving, I knew this.  She hadn't eaten since 5:30 in the morning.  But she was still coming out of the anesthesia, and she was just out of it.  She couldn't focus on anything.  She would not feed  from me.  I was kicking myself for not bringing in a bottle for her.  Dave went out to the car to get a bottle of milk that I had pumped that morning.  In the meantime, a nurse brought some glucose water for her to drink from.  It settled her down, and then I was able to nurse her.  She also took the bottle after that.  I told you she was hungry!  I think it also brought her comfort. 
Following that, the nurses then had to tape her cast all around her diaper area.  This was to provide a water barrier in case of any accidental leaks.  Cue angry child.  This seemed to take forever.  Katie was beside herself.  Dave and I were beside ourselves.  My heart hurt some more.
Finally, that part was done.  Finally Dave was able to hold his baby girl.  Finally she was able to fall asleep.  Poor little girl was traumatized and she found comfort in her daddy.  It helped both of them--it was very traumatic for her daddy to see her so upset.  He felt very helpless at that moment.
We were able to borrow a car seat from the hospital since Katie will no longer fit in her infant carrier.  We will have the car seat for as long as we need it, and then will return it to CHOC. Katie woke up right before we left and was MUCH happier.  She was back to her old self, which was very reassuring to her mommy and daddy.  My heart started to hurt a little less.
We piled in the car and made our way home, ready (or not) to face day one of life in the spica cast.  We were faced with the fact that Katie would not fit in her exersaucer (I had hoped she would, but alas the opening is too narrow for her new froggy legs), and the fact that sleep in the crib is not going to be easy.  We experimented with pillows.  We will see how that works.
So...Day 1 is done.  Hardest day ever.  It can only get better. 

 

Daddy with his little girl

 

Daddy comforting Katie

On our way home

First nap with cast

View from the nursing mommy :-)

Trying to figure out how to play with toys now

Playing on the floor

Long day

Must remember this.

The Night Before the Closed Reduction...

It's the night before the closed reduction.
I was so strong for every moment before bedtime.  Then it was time to start the bedtime routine and it really hit me that this was happening tomorrow.  I realize that it's only 3 months and that we aren't talking about forever.  But this is my baby girl.  And she's going to be uncomfortable and everything about taking care of her is going to get a little more challenging.  Add that to working full time with three young children, and it's just a tad overwhelming.  But, it's doable.  And I will do it.  And soon it will be second nature and all will be good.
But right now, at this moment, it's hard. 
Our 6 1/2 year old has had a high fever all day today.  Our 4 year old has had a low grade fever all day today.  The 6 1/2 year old has felt so sick, but was such a trooper.  The 4 year old has been the most well behaved that I think I've ever seen him.  I am praying hard that Katie does not wake up with a fever.  If she does, then we have to postpone the procedure.  Again.  And, I really don't want to postpone it.
Please pray for the health of the big brother and sister.  Please pray for the health of Katie.  And, please pray for the anxiety that I am feeling over tomorrow.  My husband is a rock.  He's staying so strong.  I don't know how he's doing it. 
Tomorrow begins at 5:30 AM when I have to wake Katie to feed her.  She can't eat 4 hours prior to her procedure, so she needs to be done eating by 6. The procedure is at 10:15 AM.
Tomorrow begins our jouney. 

 

 Enjoying her last bath for the next three months!

 

 

 

 Enjoying her last nap without her spica cast!

 

 My motto for the next three months

 

 

 

I found these jammies in her drawer for sizes 6-9 months.  I hope they still fit her in July!

 

 

Spica Table

I've been doing a lot of research online, and it seems that these spica chairs/tables are life savers for parents with children in a spica cast.  http://www.ivyrosespicachairs.com/rockinchairs.htm  She will custom design them for you--I think we'd have to go with a Disney theme.  It can't be ordered until after her cast is put on because it will be made custom to her cast measurements. 
But with the spica table comes the answer to where to sit her for solid feedings, and where to sit her so she can play happily--she may not fit in her exersaucer after her cast is put on, and she LOVES her exersaucer. 
Now to invest in some dresses for her, and I think we'll have the answer to what to dress her in, too...
It's slowly all coming together. 

Cast eve eve

So many people have done this for me the past several days. These reassuring words and the hundreds of prayers that have been said for us have really helped to ease my mind. One more day until the big day...

Our Journey Begins

A couple months ago I noticed that our baby, Katie, had an extra fold on her left thigh.  At first I thought it was cute, but then I thought I'd google it...I love to google things.  It instantly brought up something that made my heart sink:  hip dysplasia.  Surely this could NOT be what Katie has.  This must just be a coincidence.  Then I noticed that her left leg seemed to be shorter than her right leg...again, this MUST just be in my head because I'd read about it on google.  Nothing you read on google is really accurate, right?  People always say, "Don't google.  Just call the doctor."  So...

At Katie's 4 month check up I mentioned the extra fold and the leg length to her pediatrician.  He really felt that there was nothing wrong with her hips, and thought her legs looked fine.  But, after spending an extended amount of time looking at her hips and legs, he gave us the paperwork to go get her x-rays at CHOC.  Well, I put the paperwork on the shelf and kept putting it off.  It was always in the back of my head, but I think I was scared of what it was going to show me.

At 5 months old, I finally took her to get the x-ray, because I knew that if she did have it, treating it sooner is far better than later.  A few days later we got the call from the doctor that her leg length was equal (big relief, because how do you fix that?!), but there was "questionable evidence of hip dysplasia", so we were referred to a pediatric orthopedist.  I called right away, and two days later we were sitting in the office of Dr. Weinert.  He looked at her x-rays and immediately pointed out the problem:  Katie's left hip is not sitting in the socket.  It is caught behind a tendon and can't go back into place.  He then went on talking and it was all just a blur.  She has something called DDH:  Developmental Dysplasia of the Hip, and she was born with it; it just went undetected.  Then he says that he needs to move the hip back into place (Yes!) and then will need to place a cast on her body to allow it time to heal (Noooo!!!!!)  The cast, he goes on to describe, will completely cover her left leg, go across her waist, and cover half of her right leg, just above the knee.  While she has the cast on, the tendons will be strengthening and tightening, so that they'll be able to hold the leg in the hip socket when the cast is removed...in three months.  Yes.  Three months.  Three months with a giant body cast on our sweet, precious little girl. 

So, here we are.  We've had several days to let this sink in.  We aren't excited about it.  We have a lot to figure out:  Clothing in the cast, sleep in the cast, playing in the cast, eating in the cast, bathing in the cast, and diaper changes in the cast.  The cast.  Our  5 1/2 month old baby is going to be in a cast. 

I have read so many blogs and joined a couple facebook support pages.  I have decided to blog our journey because maybe our experiences will help someone else just like others have helped me. 
Katie, our "hip" Goldenbaby, will have her closed reduction (that's the name of the procedure to move the hip back into place--closed means he doesn't have to open her up to do it) on Thursday.  It will be an outpatient procedure, but she will be going under with anesthesia.  Please keep us all in your prayers.  Here's some pictures of all of our Goldenbabies. Oh how we love them so.  They are our pride and joy.